Thank you for visiting our website, a website created to not only share blogs and updates on our son, Zachariah, who has the life limiting condition, Lissencephaly, but also raise awareness of his very rare condition and the needs he has in every day life. Here you will read very honest, yet positive posts about the wonderful moments we experience and the hard times we face being a parent to a son with severe disabilities and complex needs. I hope you enjoy visiting our page and take something away from reading the blogs published.



Jesus said, “Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.”
 Matthew 19:14

‘Never stop believing in hope, because Miracles happen every day..’